theibta.org Report : Visit Site


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    The description :– the international brain tumour alliance () home about who are we? how we work our vision and mission who we work with the story our alliance governance meet the team storing your data what we do awa...

    This report updates in 20-Jun-2018

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– the international brain tumour alliance () home about who are we? how we work our vision and mission who we work with the story our alliance governance meet the team storing your data what we do awareness-raising magazine and e-news e-news archive world summits advocacy published papers attendance at conferences useful information events and conferences clinical trials portal support, advocacy and information organisations other useful websites news support us join our alliance be a corporate sponsor register/report your event leave a legacy make a donation contact home about who are we? how we work our vision and mission who we work with the story our alliance governance meet the team storing your data what we do awareness-raising magazine and e-news e-news archive world summits advocacy published papers attendance at conferences useful information events and conferences clinical trials portal support, advocacy and information organisations other useful websites news support us join our alliance be a corporate sponsor register/report your event leave a legacy make a donation contact our alliance the brings together over 100 organisations and charities from around the globe. many of our supporters work in the most challenging of environments, for example where healthcare, medicines and equipment for brain tumour treatments and care do not exist, are in short supply or difficult to access. we are led by people with first-hand experience of living with a brain tumour. by working together with other organisations and initiatives we can achieve more. raising awareness our international community of brain tumour organisations and individuals take part in events and walks year-round to raise global brain tumour awareness. click this image to see highlights of just some of the awareness-raising accomplishments around the world. policy work the engages in policy work to improve outcomes both in the brain tumour field and the world of rare cancers. we work to represent the interests of people affected by brain tumours in a wide variety of international forums. the brain tumour magazine our annual magazine is sent for free to recipients in 113 countries and widely distributed at international neuro-oncology and cancer conferences. it includes interviews with healthcare professionals, patients, caregivers and advocates, information on new treatments and other news from our international brain tumour community. raising awareness it is extremely important to raise awareness of brain tumours, which are rare diseases. we actively encourage awareness-raising and fundraising activities around the world. the established the international brain tumour awareness week , and the walk around the world for brain tumours , now in their 10th year click this image to find out more about how to get involved and how to register or report your activity. events and conferences the is pleased to list on its website the various conferences and meetings for the neuro-oncology scientific and patient communities. we also organise the biennial world summit of brain tumour patient advocates – a unique opportunity for advocates and stakeholders from around the world to exchange ideas on best practice, challenges and advocacy experiences; and build new relationships between organisations and individuals in the brain tumour advocacy field. advocacy we are involved in a wide range of advocacy activities from raising public awareness of the challenges of brain tumours to advocating for equal access to promising new therapies to encouraging the establishment of brain tumour patient and caregiver organisations in countries where they don’t yet exist. walking around the world the annual initiative, walk around the world for brain tumours , encourages people to take part in sponsored or unsponsored walks to raise awareness of brain tumours. miles walked are symbolically ‘donated’ to the target of circling the earth at the equator (24,901 miles or 40,075 kms)! click this image to find out more about how to get involved and view previous years' walks. 1 1 advocacy, awareness-raising and information the international brain tumour alliance () is a unique global network for brain tumour patient and carer groups around the world. we work alongside, and represent, members of our community - including researchers, scientists, clinicians, nurses and allied healthcare professionals - to engage in advocacy, to raise awareness and to share information. find out about some of the previous awareness-raising activities here in the spotlight - latest articles and news the is proud to partner with nci-connect stuart farrimond | news | no comments the is excited to announce its participation in a new program at the national cancer institute, center for cancer research, neuro-oncology branch called nci-connect (comprehensive oncology network evaluating rare… 2018/19 edition of the ’s “brain tumour” magazine now online! stuart farrimond | news | no comments copies of the 2018/19 world edition of our "brain tumour" magazine have been landing in the letterboxes of subscribers in over 110 countries across the globe, free of charge. e-news may 2018 released stuart farrimond | news | no comments the 's monthly e-news has now been released and been emailed to all subscribers. some of the highlights from this month include the uk government announcing the £40 million “tessa… can you help to shape the future of cancer care? a new patient survey is launched in the uk stuart farrimond | news | no comments in healthcare, inefficiency is often caused by neglecting to focus on what matters most to patients. a new international patient survey is gathering insights on inefficiencies in cancer care... more news items... read more about: the 2018 international brain tumour awareness week (20th to 27th october) the 2018 walk around the world for brain tumours (1st january to 31st december) the 2018/2019 world edition of brain tumour magazine is now available! request a free copy here or read it online now . report on the third world summit of brain tumour patient advocates 2017, london. read it online now . report of the sub-saharan africa neuro-oncology collaborative (s-sanoc) meeting, london. read it online now . our alliance click on the map above to find out more about the alliance the actively works with, and proudly support the goals of the following organisations and initiatives (click for more): what we do advocacy we collaborate with government agencies, health professional and cancer organisations, pharmaceutical companies, clinicians and research institutes and patient advocacy organisations around the world. find out more awareness-raising we strive for wider public recognition of the unique challenges patients with this devastating disease and their families face. find out more information we publish a monthly e-news with items of interest to the international brain tumour community. we also publish a major annual magazine called brain tumour which is sent for free to recipients in 110 countries. subscribe to brain tumour magazine and e-news events and conferences we maintain a constantly updated list of major regional, national and international neuro-oncology conferences and other meetings relevant to brain tumours. find out more clinical trials we maintain a list of key online clinical trial portals to help patients and carers locate clinical trial centres and understand criteria for joining a brain tumour trial. find out more ways you can support us we would love to hear from you if you'd like to join our alliance, help promote the , become a corporate sponsor, learn more about an awareness-raising event or make a donation. find out more the is grateful to all those who have donated in-kind, pro bono and funding assistance over the years, including grants from the following companies and foundations: the welcomes donations from individuals in support of its important work around the world. for further information

URL analysis for theibta.org


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bnos.org.uk
jla.nihr.ac.uk
cancer52.org.uk
ncri.org.uk

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